Where do I even begin?! Today was like a blur! Earlier this morning she was moved to Special Care because they had a room come available. So we are finally in a normal hospital room with our very own bathroom/shower!!! That is the most exciting part about this room to me! PT worked with her on head control & rolling on her side & speech worked with tastes. She got to taste carrots for the first time today! She did pretty well with it & of course we didnt actually feed it to her since shes never eaten by mouth before. We just put a little on her lips so she can lick & taste it. Rosie also got to go trick or treating around the 1st floor. Her cousin Declan came dressed up to go with her & they had so much fun (she slept through most of it). The hospital did a really nice job with it & had different departments set up tables all along the first floor where the patients could trick or treat & we got a bucket full of goodies! But.....the BEST thing that happened today was when I first talked to the Dr this morning. We were discussing how GI said theyd be ok sending Rosie home with the NG tube & I asked if she thought she could be going home in the next month or so & she said no. She did, however, say that if she continues doing well like she has been doing that she could go home within the next WEEK!!!!!! So tonight we specifically ask for prayers that everything will come together & Rosie will stay on the path that will lead her home by the end of next week :D It seems so surreal that this could all be happening so soon. Theres so much we have to do to prepare because these last few weeks have just flown by & shes really improved rapidly. There is one more thing that we need everyone to pray for. Because of this possibility of our princess coming home so soon I had to quit my job. Although we may have some financial struggles because of this, I knew it was more important that I be home to raise our daughter & take care of her. She will go home with a feeding tube & pump for continuous feeds & will have many different appts with specialists as well as continuing to do physical therapy & speech therapy to get her on track developmentally. So we also ask that everyone pray that our family will be able to find a way to make everything work. It will be a very big adjustment because Ive always worked since I was old enough but she is our #1 priority & I cant wait to make up for lost time with her & watch her learn & grow. Thank you all for your love, prayers, support & for going on this wonderful journey with us! We are blessed beyond our wildest dreams!
Posted on: Fri, 31 Oct 2014 22:52:32 +0000
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