Yesterday was another milestone day for our little Miss. Abigail had her nasogastric feeding tube removed! She is now having all feeds by mouth ☺ Abby is also doing so tremendously well with her oxygen requirements, she is now on 100% and between 30-60mls. Its only an extra 1-2% more than what we breathe. She really has come such a long way. Abigail also had her developmental assessment and did very well considering her journey. She is a little weak with her grip and gets overstimulated very easily but on a whole she is developing well. We will see physio to keep an eye on her development but she will do things in her own time when she is ready. We also had a meeting with the consultant and there is a chance we could all be home together as a family by new years! Not a guarantee, but a real possibility... we are cautiously excited! But understand we just have to wait and see.... just knowing this chapter is winding down now is amazing. To see how far our cherubs have come is truly incredible and I know we have watched two miracles happen before our eyes. I know how lucky we are. Aiden has been adjusting to home again. We had him in at the kids on Tuesday night as we were concerned about his hernia and behaviour. We have signed the consent for his surgery, but dont have a date until early next week. It was good to have him reviewed though. He was also vomiting after every feed and screaming/arching after he would vomit. We started using a milk thickener to help with the vomiting (reflux). And infacol to help him bring up wind (he is very stubborn). We are also sitting him up now to feed. All of these things seemed to have helped and last night Ash and I both had some quality blocks of sleep! And a cuddly, settled baby ☺
Posted on: Thu, 18 Dec 2014 06:50:12 +0000
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