..and on November 16, 2012, little Eliza turned 3. 2012 started off fine. She took to her love of looking through books, saying the words. She started wearing the crazy hats and outfits. She was a bundle of energy. Her giggles and laughs contagious. This is the year she came from school with her handprint class project, and a note to Dad, titled My Daddys Hand. It’s still framed up on the office wall and will always be. Her little hand and the words we can barely get through now, but a reminder of what we are fighting for. Our family took another trip to Disney. We went hiking and camping. A family reunion at the beach. But midway through the year, we hit some speed bumps. The ear infections were back. Another set of tubes. More antibiotics. At school, she began to fall behind in her speech, so we started speech therapy. Within a few months, she was back up to speed..all good. Still though, by the end of the year 2012, we were noticing she wasn’t socializing quite like other children. When we were out, she would run off in any direction with no fear. But why? In hindsight, some of these things we saw in Eliza are seen in many classic Sanfilippo cases. Large head size, frequent ear infections, learning delays, some autism like features. But going into 2013, we had no idea what news we’d receive in the upcoming year that would change our family in an instant. News we couldnt ever imagine in our worst nightmares. We are now JUST 5 DAYS from Eliza’s 5th birthday THIS SUNDAY November 16th. Please join and spread the word about her #1day1goal birthday to reach the goal at SavingEliza. You are doing it for us. People are finding out about this in other countries! Thank you and please keep at it! #SavingEliza
Posted on: Wed, 12 Nov 2014 01:09:47 +0000
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