hi and welcome to all of our new friends, I wanted to post again part of Kennas story in case anyone has any questions. Kenna was a 27 weeker born at 2lb and 13in long, she contracted bacterial meningitis in nicu at our local hospital. she has quadriplegia cp, hydrocephalus, vp shunt, chronic lung failure, LGS, oxygen dependent, gj tube, broviac, gastroparesis, infantile spasms, unclassified seizures, cvi, 4 strokes, severe developmental delay, sculiosis, torticollis, kyphosis, tracheomalacia, laryngomalacia, GERD and several other issues. Kenna is non verbal and non mobile. Kenna graduated hospice care after 7mo and is now on palliative care, shes been on a good run, wish her luck!
Posted on: Tue, 30 Sep 2014 18:34:41 +0000
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