Another day full of appointments. Nathan will be fitted for his new SPIO suit and gloves this morning and then over to the clinic to see Dr.G and from there some other tests. At least that is what I gathered from the voicemail. Nathan stayed up very, very late last night. I am so tired, my hair hurt as I watched Shorty jumping in the bed at 3am. We were able to get our reservation extended at RMH. I have no idea what to expect today. I am not sure what I need to do about school. At one point I thought he might be able to attend some but now I think we need to continue on home bound. I understand there have been some changes in administration. Teachers at WC-who do I need to call? I have no idea when we will be home or for how long. School is so far down the list but I would like to avoid jail for truancy if possible. On a good note, it seems that Make A Wish is ready to move forward on Nathans wish for a new trike and therapy room. I wish we were home. Please keep Nathan in your hearts, please pray for patience for me. This is one of those problems that I really need to walk away from for a few days and then come back to. Unfortunately, cancer does not have a pause button. Time is ticking on this insurance problem and waiver program and we are stuck here where I cannot do anything on it. Thankful to still be in the fight, blessed that Nathan continues to defy the stats but overwhelmed at the mountain. XO
Posted on: Wed, 23 Jul 2014 11:48:24 +0000
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