Help a Mom Out: She writes: Hey Im needing some help....I have a 6 yr old Daughter that has multiple health needs. She was born with TOF w/pulmonary atresia, inperferate anus, and a tethered spinal cord. We have since then recieved a pacemaker due to 3rd degree heart block. She suffers with chronic constipation and we have been unsuccessful with meds to fix this issue. The drs are now talking about long term care which ultimately give me 2 choices, either saline enemas every other day or an appendicostomy. I am looking for other parents that have been through this to connect with and get their perspectives and advice. I have so many questions and there arent support groups for things like this that I can find. Just thought some of other Imperfect moms on here might be able to help,
Posted on: Fri, 18 Apr 2014 21:49:57 +0000
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