Hi guys :) How are you all going today? I thought it would be fun to find out where everyone is from, especially now that I have some new followers. How did you guys find my page? Im currently sitting here with my naughty kitty (who doesnt like to look at the camera...) and Im waiting for my pain relief to kick in. Its been beautiful and sunny here in Melbourne, but the pollen in the air has been causing me to have crazy sneezing fits! Bless hayfever :p It was my Daddys birthday on Friday, so we went to have tea at his house. He has this awesome Indian fire pit, and they had a small fire going, so after dinner we went outside and toasted some marshmallows. Theres nothing like an inner city camp fire! haha After the dinner, Tom and I went to my friends 21st birthday party. The theme was come as something you are not, so Tom and I had good fun running around trying to find him a Darth Vader mask. I think he looked very handsome in his suit with his empire cane :) I went as Snow White (Im a costume repeater...terrible, I know) purely because Im not a Disney princess, even though I really want to be. Yesterday was pretty quiet. I graduated to my full drivers license last week (licensing laws in Australia are a bit wacky - if anyone has any questions, Ill explain in a comment). My sister is on her learners permit, so I decided to take her for a drive. It wasnt quite as bad as I thought it would be, and it was very sweet to watch her as her eyes lit up when she sat behind the wheel. I must admit, it did freak me out that she was panicking and saying and doing the exact same things that I did as a learner. Maybe we are more similar then I originally thought? Health wise, my neck and back are still super sore, and Ive been experiencing extreme light and sound sensitivity with my headaches (which caused me to pull over on the side of the road for 20 minutes last night). My colitis is still flaring (boo!), but I should be hearing back from my colorectal surgeon at the beginning of the week. And now for the not so good news. Ive been having issues with my blood sugar levels for a few years now, but they have been rearing their ugly head again and Im having 2-5 hypos a day despite being connected to 24/7 jejunal feeds. The nurses at the infusion clinic, my GP, the rheumatologist and my cardiologist all agree that Im probably not absorbing through my jejunum very well at the moment. It is also the reason that Im back down to 43 kilos again. We are waiting to hear back from an endocrinologist, because it looks like we may have to change things around a bit. And lastly, my jejunal feeding tube (j tube) has a white stopper that is supposed to sit inside your tummy. We noticed that it was coming to the surface a few weeks back, and you could see it around the site, but now it is fully out in the open! I dont know how it got out of the incision site! So there isnt really anything holding it in. A trip to my GP is definitely on the cards, and Ill have to see the PEG nurse on wednesday after my infusion. Thats all from me for now! I hope youre well :) Please pray for relief from the colitis, abdominal, neck and back pain and for answers for the doctors. Also, I was wondering if you guys would want me to start answering any questions you may have in a video? It would be a way for you to get to know me better? Let me know what you think :) XX Li
Posted on: Sun, 28 Sep 2014 01:52:07 +0000
Trending Topics
Recently Viewed Topics
© 2015