Holding Joeys hand in sleep. He is in tears. Me: Why are you crying again, honey? Is it the tummy pain? Joey: No, its not the pain. There are many things I cant do now. Me: Like what? Joey: I used to be a fast runner. Now I cant run. Me: Maybe thats your body telling you need to take a break now. After you recover, you can run again. We saw so many kids in childrens hospital that cant walk. Remember Nick, the guy has no limb? Joey: I used to think fast at math. Now I feel dizzy in the middle of the competition. Me: but you still have a huge trophy. Me: Think about the things you can do after you were sick but you never did before. Joey, Like what? Me: We went to many family retreats and you made new friends. You love Blue skies so much. Mommy met so many people that I never think I would know them if it were not you. He stopped crying. Me: Can you imagine you would have a birthday party with Jeremy Shafer? Joey: I am ok now. Me: You have so many new toys, 100-wish quilt... Joey: Hmmm. I want to sleep now. Me: Tell me anything you want to do but we never do it before. There so many things we can do together. After summer, you will run again, I promise. Im holding my tears as if Im lying to him. He doesnt need an expensive gift or fancy trip. He just wants to run, run like a kid. But I cant give him, drs cant give him, drug company cant give him, a simple wish. Thank you, my friends, for pulling me through this nightmare. Your new profile picture gives me back strength. Were blessed with amazing supports from you. As I want to find out where God leads us to in this journey, we will enjoy every moment with Joey, no matter they are happy or painful moments. If there is a miracle in the world, he will have more years to come. If not, he already grew up a few years in my heart. No matter what the outcome is, I will never lose him.
Posted on: Mon, 05 May 2014 02:56:37 +0000
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