In the month of January the March of Dimes holds its annual “National Birth Defects Prevention Month”. This national event insipired my husband and I, in 2011, to start the First Annual Worldwide “Color it Periwinkle to raise awareness for esophageal atresia/tracheoesophageal fistula”; a birth defect which falls into the category of “no known cause”. “My child is 1 of the 70%” I look at this statement and even after 7 ½ years, it is still a hard statement to digest, but also one that has driven me to advocate for my child and many other children born with esophageal atresia/tracheoesophageal fistula (EA/TEF). We firmly believe that more research means better tools to advance the medical technology and other arenas for children born with EA/TEF and the multitude of additional birth defects that can co-occur with this condition.
Posted on: Tue, 30 Dec 2014 11:35:20 +0000
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