Kaenan had one of the worst nights as far as how he felt....he - TopicsExpress

Kaenan had one of the worst nights as far as how he felt....he started gettin upset about 11was in full scream jerking body all around mode by 11:30....feeding tube was shut off shortly after that , the screaming went on literally non stop till about 2am nothing worked at consoling him his little stomach was hurting that bad (he did get Tylenol),.... They started feeding tube back up but have decreased amounts, when weighted this morning he has again lost a small amount... Exhausted and hoping today is better

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