Kristen’s story Emily was diagnosed with D-Tga at my 18 week pre natal scan. Emily was born at the Mater in a pretty healthy state. Within 2 hours her oxygen stats had fallen to 30 and she required a Balloon Septostomy. We were very fortunate that Emily had no other defect except for the TGA. She stayed in Nicu on a ventilator for 4 days and was then transferred to Picu and extubated. On day 5 we got out first cuddle. On day 6 we were transferred to Special Care on the ward and waiting for the BIG day, Arterial Switch Surgery. Emily had her Switch performed by Dr Karl on day 8. She recovered pretty fast considering the complexity of the procedure. We left hospital on day 17. Apart from a mild case of Bilateral Pulmonary Branch Stenosis Emily has had no other complications. What a superstar! We were so fortunate to know in advance so we could prepare and the cardiac team were ready and waiting for our Princess to make her entrance. Dr Gooi, Dr Morewood, Dr Karl, the Nursing staff, the cardiac co-ordination team and the team at the Maternal Foetal medicine were all amazing. HeatKids played an important part in supporting our family through this time. The information on the Web site was invaluable. In particular the links to specific Congenital Heart Conditions. The HeartKids Co-ordinators were so friendly and helpful. Just knowing there was somewhere to have a cup of tea and a cake away from the bedside was wonderful. I even slept on the fold out bed in the HeartKids Tea room! I am holding a Tea party to support Heartkids who do such a wonderful job supporting parents like me. For more information on hosting a #cuppa for Heartkids visit cuppaforheartkids.org.au/
Posted on: Thu, 07 Aug 2014 00:00:00 +0000
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