Making progress on getting medical professionals to understand, - TopicsExpress

Making progress on getting medical professionals to understand, recommend, safely implement, and provide good follow up care to those families who choose the amino acid diet with their children who have SMA. This is a HUGE DEAL, and I firmly believe starting early with both the diet and aggressive respiratory care (CoughAssist and bipap) will improve and lengthen lives of our babies. Im thrilled that us renegade parents, who have fought for years trying to convince docs and nutritionists, are finally being listened to.

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kimmie • 12 hours ago I never post comments on anything, but I