Ok, Im going to try to update, but Ive been an emotional train wreck today. Elijah is wonderful, so he by no means, is causing my emotions! So, we went to the neurologist yesterday. The same one who in March said Elijahs brain was only working at about 20%. Well, as you all know, since Elijah came into our home, we decided that we would try to do everything natural as long as possible. With 80% of his brain not working, and he didnt seem like he was in pain, the worse outcome was the same. I have spent every single day since March 6, stimulating Elijahs brain, massaging his muscles, trying natural remedies for Elijahs conditions. Of course Ive had a wonderful support team of experts, and a wonderful OT and PT. This has been very expensive since insurance doesnt cover natural supplies. But it has been very rewarding. Anyways, I was pretty comfortable with the fact, that the neurologist would start seizure meds, and muscle relaxers. NOPE!!!! Elijah had 2 seizures while we were there, and he doesnt think at this time, they are damaging Elijahs brain more than its already damaged. What he said next, had me balling my eyes out. He got down on 1 knee as I was holding Elijah in my lap. He said, Lisa, I dont know what you are doing with this child of God, but you are a blessing in his life. I was so confused. He said for the seizures, he may need medicine if he learns to walk, because it could cause him to fall, but he also said in 6 months, their may be a natural seizure medicine for us to consider...cannabis oil!!!!! And for his tight muscles in his shoulders, he recommended us buy a posture vest. He reminded me to look how far Elijah has come. He wants me to continue doing what Im doing, because it doesnt have harsh side effects!! He did say that if I feel like a needs the Biclofen, to call. This is AMAZING news guys. This is why his Wish List is like it is. This is why I may ask for help from time to time, and this is why, I will NEVER give up on Elijah, no matter what may be going on in my personal life. Prayers and a child with a desire to live, have made this happen. He is a miracle. And thank you to everyone who has supported my decisions, and thank you to those who havent!! Its the negative that pushes me to positive. Keep praying for Elijah, and that he holds on to the strength he has gained!
Posted on: Fri, 01 Aug 2014 02:02:52 +0000
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