Sweet Farrah rested well last night. She was given sleep meds and IV steroids along with fluids. I cant describe how difficult the decision is to give her steroids. We HATE them but the doctors are hopeful it will make her feel better. She woke up this morning for a twenty minutes or so and now is back asleep. Her tiny body is exhausted, she still hasnt eaten anything. She did drink her milk and hasnt vomited, improvement. She looks very different then she did a week ago, very very sick little girl. Her face has changed, her eyes are different, glassy and seem unfocused. She isnt able to close her eyelids when shes sleeping, her mouth seems to not be closing either. Oh my poor sweet baby, my heart and soul want to take this cancer for you so badly. No baby should suffer in this way, shes only two. Two years old, she should be running, playing and testing her limits instead she lies in a hospital bed being awoken for vitals, bloodwork and examined way too often. My angel, how did this happen so fast? Yesterday was seven months since her diagnosis, seven months since I heard doctors tell me she would likely die within nine months. Last night, I was asked what the orders are if she codes... Do I want them to try and save her life with all efforts they have? Another earth shattering moment, another question no mother should ever be asked, all I want is what is best for Farrah. I want her free from cancer, free from pain, we will still be doing the scheduled MRI Monday. Please pray there is no progression, no change in the tumor. I need more time with Farrah❤️ the DIPG community has lost three precious girls this weekend alone. Why is there no cure, such tiny funding for pediatric research, no progress in over thirty years. Hearts broken and dreams shattered by childhood cancer really isnt that rare.
Posted on: Sun, 16 Nov 2014 15:10:26 +0000
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