Today has been great!! I havent been over to the hospital yet, but trust me I call about every 2-4 hours-:) shes doing amazing!! Shes still taking 60 ml with no issues!! She had a great night, but did require a little more oxygen.. She was on an average of 21-35% 35 was when she was really mad changing her picc dressing.... She slept pretty well!! Today has been good as well!! She started off on 2 liters high flow, and shes currently on 1 liter nasal cannula at 25%!! So far so good!! Tomorrow is a weaning day from hydrocortisone-:) I think Tuesday it should be done... She had to miss her 4 month vaccines due to the steroids.. She looks great!! Seeking specific prayers for her work of breathing and continuous weaning of oxygen, her bottle feeds starting back up Monday, and of course no set backs!!!!
Posted on: Sat, 07 Jun 2014 21:03:34 +0000
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