Update on Jaydyn: Life is continuing as we know it. Some days it is impossible to get through it. Some days it is easy and darn right enjoyable. I have been working closely with Jaydyn to get him back to oral feeds but he continues to be afraid of anything in his mouth. I am armed and ready to fight FSCD to continue our services. Now I am asking for more support in the OT and PT department. Right now Jaydyn is making some substantial break throughs. Sitting (unassisted), bearing weight on his feet, attempting transitional moves (sit to crawl stance) and is rolling EVERYWHERE!! He is making huge advances and I feel he would benefit so much from more interventions. I am so impressed with Jaydyn. He continues to surprise us all. He also has picked up a few words. Momma, Dadda, lion, bear, hi, bye and shakes his head no when he doesnt want to do something. It is so adorable. Having Jaydyn has opened my eyes to the truths in life. The truths in love and the truths in friends and family. I believe that certain people are brought to you for certain things in your life. Some stay and some leave. You lose quantity of friends and gain quality friends. The ones who research your childs illness and ask about how they are. The ones who remember the important milestones and appointments. The ones who let you cry and hear you scream if you need to. The ones who are not afraid. I have gained more then I have lost. Although at times it is so hurtful to be reminded of what I lost. Not being invited to birthdays or get togethers, bachelorette parties or dinners. I am reminded that my life has changed and will never be what it was again. That people are tired of listening to our story and life must go on. I know in my heart that I am exactly where I am supposed to be. My life has a meaning and I am working towards changing things for my sons and their future. I find comfort in knowing that I am proactive and dont let stuff get me down too long. I have a quirky saying Keep it moving.... And thats what I am doing. Keeping it moving. Thank you for contributing to our success. Your constant prayers and good wishes are well received and still needed on certain days. Cheers to my crazy, chaotic, down right exhausting NORMAL Life....
Posted on: Fri, 08 Aug 2014 03:51:03 +0000
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