Barbara Zak Anderson Posts - TopicsExpress

Life is funny. You torture yourself with doubt and worry and lose
Life is funny. You torture yourself with doubt and worry and lose yourself in paperwork and trying to navigate a system that never felt *right*, but y...

I finally have closure and an update. Finally. Officially re: the
I finally have closure and an update. Finally. Officially re: the CED trial we were navigating. An honest answer, the one we have been waiting for wa...

Its 10:44 pm- early for NJ, not so early for a 6 hour difference
Its 10:44 pm- early for NJ, not so early for a 6 hour difference here in Oahu. As beautiful and wondrous as our first day was, I must be honest- I co...

On the eve of Lilys 3rd cycle chemo end and trip to MD, packing
On the eve of Lilys 3rd cycle chemo end and trip to MD, packing and the big MRI week that will tie up most of our uncertain question ends, I find mys...

In the thick of my inner turmoil, I realized Lily had a drs
In the thick of my inner turmoil, I realized Lily had a drs appointment. This song came on in the car and while Im trying to keep it together, here is...

On Day 101 of #DIPG I thank God for the most perfect normalday.
On Day 101 of #DIPG I thank God for the most perfect normalday. Just a regular day. A day like I have had before DIPG, many, many times before, and ne...

There is this one path by the Inn that is scented with the most
There is this one path by the Inn that is scented with the most beautiful pine, now that the magnolias are dormant. Its seductive and soothing. Its th...

First, may I just say, how beautiful and amazing your support and
First, may I just say, how beautiful and amazing your support and love for Lily is? I cant tell you how much it has helped me. I keep focused or refoc...

We miss you all so much! Lily has been crazy busy with Neuro and
We miss you all so much! Lily has been crazy busy with Neuro and Neuro psych Evals, radiation mask refittings, IV lines, meds, labs...they even wanted...