Sturge Weber Awareness Day Posts - TopicsExpress

Mandy Lonergan We are on a mission to raise awareness world
Mandy Lonergan We are on a mission to raise awareness world wide for Sturge-Weber by getting Ellen DeGeneres on board! We are little fish in a BIG se...

Welcome to Holland (Part 2) by Anonymous I have been in Holland
Welcome to Holland (Part 2) by Anonymous I have been in Holland for over a decade now. It has become home. I have had time to catch my breath, to set...

Thank you so much to PenCRU for this research into Seizures:
Thank you so much to PenCRU for this research into Seizures: emergency medication and outcomes in Surge-Weber Syndrome. Information last updated: Sept...