Joubert Syndrome & Related Disorders Foundation Posts - TopicsExpress

Hello and Happy New Year to all! We know that some of you
Hello and Happy New Year to all! We know that some of you experienced issues with the JS-LIFE survey, and we thank you for your patience and willingn...

Please help! Could you complete the JS-LIFE survey during your
Please help! Could you complete the JS-LIFE survey during your holiday down time? So the holidays are almost over – do you have some free time to c...

What can the JSRDF do for you? Thats the theme for this Mondays
What can the JSRDF do for you? Thats the theme for this Mondays Town Hall meeting at 8:30EST/5:30PST. Join our discussion via phone or by following ...

Without further adieu, the Grand Prize winner of the October
Without further adieu, the Grand Prize winner of the October #JSLIFE contest is Ellah St.Clair-Rumore! Ellah can choose between an iPad Retina or a $...

Please see the official Press Release from Genetic Alliance on the
Please see the official Press Release from Genetic Alliance on the launch of JS-LIFE to help you understand the gravity of this moment for us as a sma...

Attention JSRDF families and friends: The time is very near for
Attention JSRDF families and friends: The time is very near for the official launch of JS-LIFE! You are part of an important and exciting transformat...

Need help getting to the 2015 #JSRDFconferece in Chicago, IL?
Need help getting to the 2015 #JSRDFconferece in Chicago, IL? Personal fundraisers, grants, and sponsorships are an easy way** Here are some great id...

Thank you Debbie for accepting the #IceBucketChallenge to raise
Thank you Debbie for accepting the #IceBucketChallenge to raise awareness and funds for Joubert syndrome on behalf of Izzy who also has this extremely...

Our friends at Community Engaged Network for All cannot emphasize
Our friends at Community Engaged Network for All cannot emphasize enough the need to foster additional medical research for #JoubertSyndrome in order ...

The University of Washington Joubert Syndrome Research Program is
The University of Washington Joubert Syndrome Research Program is partnering with another University of Washington Research Project My46 to study the ...